I am writing about my frustration with the state of Florida and what is going on in other states that shows how little Florida does for anyone who is severely handicapped since birth, and how the state does nothing for a single mother who has to stay home to take care of her child.
I moved to Florida in March with my handicapped daughter. When I spoke to state workers about what things I had to prepare myself for regarding my handicapped daughter and for me, as a single mother, when I got here, I was told by everyone there would be no problems. I was told that when I got to Florida everything would be transferred over — that all I had to do was get in touch with the state workers, doctors and anyone else I needed to get settled down with my daughter.
It has taken me over three months to get medical help for my daughter, and I am still working on getting the help and other things she needs to have some kind of life.
I am finding out that Florida has nothing for children who are handicapped and much less for the parents of them. I finally got my daughter medical help, but her other needs are even tougher to get. She needs diapers, and the state will only pay for very cheap diapers that aren’t very absorbent. She goes through twice the amount of diapers because they aren’t absorbent enough and has to wear two at one time. She needs heavier diapers, and the state won’t pay for them. What is the logic?
Why is it that Florida does so little for the very needy? What does Florida have against children who are severely handicapped? Don’t they deserve some kind of life, too? If you think there aren’t any severely handicapped children around, look around you.
In Connecticut I could get help to care for my daughter so I could work. In Florida there is no such thing. I am trying to find a job, but no one will hire me for the hours I can work. My daughter needs one-on-one care for 24 hours.
The only money coming in is my daughter’s disability check and a child support check totaling $1,235 a month. Because of that money, I do not qualify for any medical for myself. I don’t even qualify for the great Obamacare.
Yes, I was able to go to a health clinic, no thanks to the state. I have a heart murmur and high blood pressure; my knees are bone-on-bone.
The doctor gave me scripts for medication. I have no money to get the medication. I was given a number to call — it was for a church.
I do not know what to do next. It is very hard to pay the bills and have a roof over our heads. My rent alone is $700 a month. Never mind the electricity, water and all of the other expenses that go along with trying to make a living for me and my daughter. I am at my wit’s end trying to juggle it all, and I do not know where to turn next.
Wendy M. Carley